It's a disease many know little about... But it's one that's torn Karena Whittaker's family apart.
Earlier this year we brought you the story of Riverland local Kevin Magaard who suffers from an extreme case of neurofibromatosis. His entire body is covered in bubble like tumours but external tumours aren't the only form of the devastating disease... Karena and many of her family have NF... But their tumours have grown internally.